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Note from Pastor David K. Spurbeck Sr., February 08, 2009 My week has been very busy. Sunday afternoon Joanna Christiansen, 21 year old daughter of Dan and Kathy Christiansen, was in a snow board accident on Mount Hood. She hit a rock and went airborne and crashed. Her back was broken and vertebra T7 was shattered. She was Life Flighted to Oregon Health Sciences University Hospital in Portland (where her sister Karen works). She went into surgery about four hours after the accident. She had no feeling from the waist down and was paralyzed. The surgeon put steel rods in her back and removed bone fragments. He discovered that her spinal cord was in tact and the sheath about the spinal cord was not compromised by the accident. That was a blessing. She is in God's hands as to whether she will be able to walk again. The worst case scenario is that she will be able to live a fairly normal life though confined to a wheel chair. She was in the intensive care unit where Karen works. Friday morning she was moved from OHSU to Rehabilitation Institute of Oregon. Pray for the family in these days. The saints have rallied in marvelous support and many others share Joanna and her family at the Throne. God has used His Word and His saints to encourage them all. I am thankful. Joanna has many friends – some believers and some unbelievers – and many of them have been to see her. The move to rehabilitation had been called a move to "boot camp" and this is where the real work will begin. It will be 6 months to a year before we will know the extent of healing and handicap. Isn't it nice to know that a believer has the presence of the Three Persons dwelling in her. God is with her! The Indwelling Comforter certainly ministers in special ways. The Creator of the Universe actively is at work in His saints! To Him is the glory! Serving the Chief Shepherd of the Sheep,--DKS P. S. Joanna was tired this afternoon (Saturday) after the trauma. Her blood pressure has been low so she wasn't able to take a trip in her wheelchair. She has had many visitors from many places. Three of her close friends flew in from California and Nebraska to see her and be with her for the weekend. Joanna's attitude has been very good and up. She has been working as an assistant physical and occupational therapist and so is quite well acquainted with some of what will happen in therapy. I think we are all very thankful with her for God's marvelous grace. From: Kathy Christiansen Subject: Joanna's Journey on Saturday Date: Saturday, February 14, 2009 10:55 PM R.I.O. Rocks!!!!! You wouldn't know that this was a place of serious rehab by the "party" going on in Joanna's room. Her friends flock to her bedside with chocolates, balloons, sparkling cider, books, magazines, stuffed animals, clothes, cameras snapping, smiles all around. Did I mention flowers? A windowsill full of them. The serious side of things is that the nurses are trying to get Joanna up more and more but that nasty low blood pressure is limiting her. She got into her wheelchair this morning but had to get right back in bed. This evening she tried it again, sloooooooooooooowly acclimating to vertical. She took a self-propelled trip around the "block", ran into even more visitors and "hit the wall". Karen was present to gently keep her conscious long enough to get her back to her room where the staff got her back to horizontal in quick fashion. The nurses and physical therapists are wonderful with her. They teach her in very subtle ways about how to care for herself so that she is learning perhaps without even realizing it. The ramp up may appear deceptively easy, but will gain in difficulty day by day as she is challenged to do more and more. There is a program here - very definitely! We are anticipating the good progress that she will make over the weeks to come. We thank those who have visited in person or by phone, and those who have sent emails and cards. All are deeply appreciated. We thank God for His provisions day by day, knowing He is already in the future and preparing the way for us. There are many details to attend to and we'll get to them one by one. Resting by faith, Kathy and Dan From: Kathy Christiansen Subject: Joanna's Journey Continues Date: Thursday, February 19, 2009 10:00 PM Thank you all who have sent cards, emails and voicemails. Joanna wants you to know that she really appreciates them! The RIO staff has come to the conclusion that there have been way too many visitors and that Joanna isn't resting enough to heal properly. She is actually in a very fragile medical condition even though she appears to be "okay". She has had some good times in her various therapies, including making a trip outside to the healing garden and standing upright in the standing apparatus. They are doing everything to keep her muscles stretched out and flexible as well as strengthening as many as possible. But she needs rest most of all so that her spinal cord will have maximum healing opportunity. She will be home in about three weeks (no date for sure) and will be thrilled to entertain guests at that time. Thank you for understanding and for keeping your visitation urges on hold. There is much yet to assimilate in terms of her disability, change in routine and freedom of mobility. We are working to optimize all aspects of her life. Thank you for support, encouragement, offers of help and food. It is God who is at work in you, both to will and be energized to do His good pleasure. Philippians 2:13 Kathy and Dan Note from Joanna's Pastor, David Spurbeck Joanna began serious rehabilitation therapy this week. It is designed to train her to be as independent as possible. Her back injury has left her paralyzed from the waist down. The injury was a very serious injury. She has a team of physical therapists and occupational therapists working with her. They have her lifting weights to improve her upper body strength. She has been working on maneuvering the wheel chair and moving to and from the wheelchair. She has been outdoors a couple of times this week learning to manipulate the chair over curbs. As you can imagine, she has to relearn to do many things that were easy but now are very difficult. Her team is hoping that she will be able to go home in about three weeks. This will involve some consequential remodeling. How can you communicate with the Father on her behalf? Intercede for spiritual and emotional strength as she goes through the normal process of grief. Remember her fears concerning the future. Remember her need for physical strength and rest so that she can heal. This kind of injury is conducive to other health issues. The surgery incision seems to be healing. Friday she had a massage therapist work to put her ribs back where they belong – this should take care of pain in the sternum. This is a common result of this kind of back surgery. She has been overwhelmed with visitors which has prevented some much needed rest. They are limiting visitors to permit her to rest and gather strength. Intercede that the Holy Spirit will bring portions of God's Word to her mind to sustain her through the ups and downs of rehabilitation and her new life. Remember Dan and Kathy (Dad and Mom) especially through this time as well as sisters Karen and Elizabeth . I know many of you have been talking with the Father about all of this and encourage you to continue to do so. My week has been involved with several trips to Portland and the hospital. These have certainly given me opportunity to think about the grace of our God and His perfect plan for our lives. We walk by faith and not by sight. I have often caught myself thinking of the words of a song the college quartet sang as a part of our program in my freshman year. I couldn't help but share it with Joanna. The title is "God hath not Promised." Here is the first verse and chorus. God hath not promised skies always blue, Flower strewn pathways all our lives through; God hath not promised sun without rain, Joy without sorrow, peace without pain. But God hath promised strength for the day, Rest for the labor, light for the way, Grace for the trials, help from above, Unfailing sympathy, undying love. Trusting in a Faithful God, DKS Subject: In Joanna's own words today - her first writing since the accident Date: Friday, February 20, 2009 11:06 PM I hope this finds you all well and in good spirits. I've had a great, encouraging, busy week at RIO. The staff and therapists here at RIO are more than amazing. They are the most compassionate human beings I've met in the medical field. I have about four or five hours of therapy everyday. I work one on one with the therapists assigned to me. I'm doing things like learning to transfer between my chair and bed - with a sliding board and without - how to roll over in bed, and how to get myself into and out of bed - all without the use of my legs. I stood up for 10 minutes in a standing frame one day and I realized I was taller than all my therapists. Since I have use of my upper body I get to work out in the gym here. It's like 24 hour fitness. I get to go there several times a week. Today, I had a friend approved to take me outside in my chair so now I can go to DaVinci's for coffee and crepes. I was having so many visitors that my therapists were getting worried so they requested that I severely limit the amount of people I saw because I need my rest as my spinal cord mostly regenerates while I am sleeping and resting. So, I'm really sad, but am looking forward to seeing all of you when I get out.:) I've been doing great with therapy this week, but all my excercise caught up with me today along with my anemia so I was pretty tired and rested all afternoon. I was too tired to even watch a movie. I'm too tired to write this email even... I can't express how much everyone's cards and words and flowers help me get through each day. They are so encouraging - especially when I find out that people I don't know are praying for me. It means a lot. My friends created a mural of photos of me and my crazy adventures over the last few years and posted it in my room. It makes me smile every time I look at it, which is a lot since I'm in bed looking at it. This is the most difficult thing I've gone through in my life. I can't explain how it feels and I can't predict how I'm going to get through it. God is my mainstay through this from the first second and before. It is a constant struggle to keep my mind in the right place especially when my legs don't work like they are supposed to. But when my mind is in the right place I have a peace that is God given while remembering the verses about being thankful, God not giving me anything more than I can handle, and about the good works God has for me, knowing that I am equipped for them even in this body. Thank you again everybody for your prayers and thoughts. I can't wait to see you all again soon. Everybody has encouraged me so much. Hugs for everyone and kisses for those who want them.:) [Joanna quoted from Facebook]
My goodness! I have started this post 5 times at least only to have the browser window close or something happen so everything I've written has been deleted. But I think that was for the best becuase each letter that I started was started off very differently, but all on the same note that I was having some very hard times and trying to look through all the fog and grasp some measure of hope. But writing this now, I can honestly say that I have so much more peace and understanding and hope about my situation that God has felt I need and was/am capable of going through. The first week at RIO was hard, definitely, just because I saw myself in a wheelchair for the first time and had to come to grips that this was the beginning of something that I could never imagine myself in. I slowly worked through the initial stages of my grief and felt better by the end of the week, especially with the never ending support of my family and friend. But week number 2 hit and it hit hard. There wasn't a day that I wasn't crying, asking God "why me", not knowing HOW i was EVER going to gett through this. I spent a day literally in shock, not able to listen to much of what the therapists were saying becuase i kept repeating in my head " how in the world did this happen?" My mom and dad and friends helped me through most of those hard times, but sometimes getting up in the morning was the worst part of my day. I would have dreams that THIS was a dream and then wake up and face a huge dissapointment. I just wanted to go back to sleep. I spent several days like this. All the while, I kept asking God, why am I having all these emotions when I know you did this for your glory and your good and that you're not out there to "get me" and that you know I can handle this? I kept thinking that because I wasn't seeing results today, I wasn't progressing. I have had the blessing of having 2 of my pastors coming to see me regularly throughout the week, being there to talk to me, listen to what i was going through and share encouraging verses from God's word. So in my head I "knew" that things would work themselves out, but I also had all this emotion that wouldn't stop flooding out of my eyes and nose and heart. That's when a friend of Teresa's came up to see me. This was a woman who had been in a similar accident at 19, 11 years ago, and was told she could never walk again. She walked into my room last night with a cane and the most beautiful gait I had ever seen. It wasn't perfect, but when she talked to me about her journey through her injury and continuting recovery, she gave me such a new perspective on everything! She said progress could only be counted in months and years, not days. And there is never an end to my recovery, it will last until the day I die. It won't stop at 5 years or 10, my nervous system will continue to grow and figure out what the heck happened to it for a long time. That gave me so much hope. I woke up this morning with the best attitude (minus the waking up too early part) and KNEW in my heart this was going to be a great day and the start of me looking forward to my recovery whole-heartedly. I also had the great pleasure to meet another wonderful lady who had another similar accident to mine, but just two years ago. She is still in a chair, but just last month was so excited to see her toes start to twitch. She too, told me that recovery is only measured on the grand scale of months and years. She had just passed her boards for her MD license and was on the brink of a great career. She never let this incident slow her down though. She's doing amazingly well and thriving! She was such an inspiration to talk to, trying to download as much information to me as she could in our short time together before my PT found me and dragged me back into therapy, haha...well not quite dragged but I was still sorry I had such a seemingly short time with her. Both of these ladies have given me their contact information and said if they can help with anything, please let them know. The first lady actually called me this night, just to make sure i was doing okay and to check up on me. She said to call anytime, if I'm crying in the middle of the night or if I had some new feeling in my leg. She's there for me all the way. I have to admit, I was scared to meet other people that were in my position. Especially 2 in pretty much one day! But God i think just placed them in my life at just the right time. I needed to sorrow and needed to cry about what had happened and I needed to even struggle with how to put what I could in some sort of order. It helped me understand some things in life that I can't even explain. They're life events that wil always stay with me. God has been there every step of the way, but now i am SO EXCITED to go full steam ahead with my life. Not just my rehab and recovery, but life. It's still there and I'm still living it by grace. My injury is not my life. I thought it would be for the longest time. And hey! these 3 weeks have been a LONG time! But my life is so much more; it's letting God work through me for his will...I don't know where I'll be in 2 or 3 or 9 years. But I know this is that huge push that will shape how I see life and I am so excited to see what God has for me. I can't imagine that he could use someone who's body has been so beat up for his good, but you know...he is, as long as I let him, and it's like watching your favorite mystery novel unfold. Who knows what's going to happen? But He's directing it and it's goign to be the best book ever! On another note, therapy is going amazing. The PTs and OTs are either being very nice or are actually impressed at how fast I'm learning things and progressing. My age, previous health, and size are all on my side. I'm so motivated to do as much as I can. A few times this last week I've been able to be on my knees and hands, just balancing. I "crawled" with my PT's help and then later I learned to kneel and get my balance without touching anything. That felt so amazing!!!! I was finally off my butt and off my back and the pressure was going down my body into my legs! I wanted to stay like that for hours! I've been practicing my sitting balance where I'll sit on the edge of the gym mat (that's basically like a huge bed, but with a mat on top of it) and I'll shoot hoops or throw balls at targets or play "tennis" with my PT while trying not to touch the mat with my hands. It's gone better than expected! It's so hard to explain, and i can in the nicest way say that most of you will never understand what it feels like, but my waist feels like it's on a bobble head doll. I can't feel anything below my rib cage, so to sit, it's extreemly unstable. I will learn my balance over time, but that time should be too long. I can't, for example, sit on the edge of the bed and put a shirt on, I would definitly fall over. But working in baby steps where 2 weeks ago, i couldn't even sit up to now, I can shoot hoops (I didn't say make the hoops, haha!) and not need to 'touch down' with my hands is huge for me. Okay, well, there were a couple shots that did throw me off and I did touch down but for the majority I didn't :) There is so much that is happening here, I can't possibly write it all down. I'm still overwhelmed at how much suppport is being shown to me and my family. All my close friends have been amazing and I'm stil getting cards and letters from people I've met just a few times or from friends from years ago. EVERY SINGLE card is the sweetest to read. I wish i could reply to all of them, but here I can at least say, thank you! Thank you so much! I don't know how all God is working in everything surrounding my situation, but He IS working and working a lot. He's my strength through this and I"m hoping He is yours for every trial and tribulation that you go through, no matter how small or big, because if he can help me not just get through this, but thrive through this, just imagine what he can do through you and for you on a "bad day" or a car accident or even some serious health issues. I don't know...I'm just thankful that I've got him on my side! I'll try to keep you all posted a little more often. And again, thank you all for everything you're doing, all your thoughts and prayers and EVERYTHING! Love to you all, hugs and kisses (to the less squeemish!) Joanna
While fog banks surround the Land of Familiar, the sunshine of His love brightens the sky above the Sea of Trust. Sailing into sight-limiting "soup", the passengers strain their eyes for any impressions of land, even a clump of sand. By faith, we know that He is channeling our course for a New Land of Normal, but we just aren't there yet. However, there are a few vague images emerging from the fog. Time will surely give them more substance. Joanna continues to improve her balancing senses. We toss balls across a short distance, trying to make her reach for the outside shots. She concentrates with all her strength and returns the balls with a few surprises of her own! Today she worked at a rudimentary form of crawling by shifting her weight from side to side as the therapists moved her legs forward one at a time. She laid flat on the floor mat, commenting on how good it felt to be stretched out again, and then learned how to position herself to pull up on a low exercise table and twist so that she could hoist herself up to a sitting position on the table top. This will lead her to the skill of getting back into her wheel chair when, and NOT if, she falls out. She practiced car transfers with family and friends in anticipation of more outings. She works to perfect her popover transfers from chair to bed or other sitting item. There was a kitchen and cooking session this week as well as shower and tub transfer practice. The recreational therapist took her to play pool today (she wants each one of you to play one game of pool from a wheel chair and see how difficult it is to make those stretch shots) and will take her to a paraplegic tennis club game tomorrow. These outings are designed to show her that life can be just as rich from a chair as from a standing position. Joanna's sisters work to surround her with security, comfort and encouragement. They will be a key part of her support team once she moves back home. Dan and friends have been working on home modifications to make life in a wheel chair less cumbersome. All these sightings emerging from the fog are coming to show us the way to the New Land of Normal. God is pulling so many little details together and providing for us all in ways we could never have imagined: a kind neighbor letting us store furniture in her attic, a friend doing plumbing work, another friend setting up an in-home communication system, professionals pointing the ways to resources and helps, more meals from loving friends, construction helps from church friends, adaptive equipment from virtual strangers who "happened" to have it on hand. We marvel at God's repetitious manifestation of His wisdom and power and kindness. May you be encouraged by seeing this journey unfold and praise God for His currents of love. Thankfully, Kathy and family Note from Pastor Spurbeck, March 7, 2009 My weeks are always busy which I guess is really quite normal. I was in Portland three days sharing with Joanna. Chris Camilli shares two days with her. She is progressing with her rehabilitation learning all kinds of new skills. I walked into her room on Wednesday and she had me look at her abdomen and she flexed her front abdominal muscles - that's progress. I understand that as healing takes place those muscles are among the first to engage with motor responses. She generally has a good attitude and is quite a testimony. I have been blessed to be one of the "spiritual therapists." She is scheduled to leave the rehab unit on the 17th so Dan and Kathy are involved in lots of preparation. Remember them at the Throne. With you we trust our Great God as we anticipate our catching up to meet our Lord in the air. Ensphered in grace,--DKS
Post #1Joanna Christiansen wrote2 minutes agoHeeeyyy Everyone!! I have to smile...I'm NEVER good at keeping on track and keeping everyone posted as much as I'd like to or try! So here I'm writing again, delayed, I'm sorry! But I do have a lot that has gone on in the last week (gulp..p.lus!) or so. Again, it's still an emotional and physical battle. I don't think that will change for years. It will lesson, as things to do with time, but I don't know if I'll ever get completely adjusted to this new life. BUT since I don't have the choice...I've tried my best this week to stay on the road to a positive recovery. In therapy I've been doing a lot of transfers between the chair and benches and beds. Those are the basics that I still have a little trouble with. But once I master them I can pop into cars and slide onto couches with no problem. The only thing is that it's all my arms that are doing the work. And as most of you know, I'm not that husky of a girl. I'm still working on getting that muscle mass built up there to lift the rest of my body! I've also been doing a lot of sitting balance work with OT/PT. I'll sit on the edge of the gym mat and work on free-weights. As an equivilant, try sitting on one of those huge exercise balls they use in yoga and without touching your feet to the floor work your biceps, triceps, delts, and pecs. Yeahhhhh....I need a lot of practice on those! But after a while I got the hang of it. They even put me on a half - medicine ball to balance on. It works your trunk muscles. For everyone else, this would be like sitting on top of two yoga medicine balls. We had a few laughs as I was struggling with that. But other things I enjoyed were getting into the quadriped position where I got on my hands and knees and balanced. Then I worked on short kneeling where I was resting back on my legs and and I had various soft balls being thrown at me from all different angles. Just to feel a different position on my body besides sitting down!!! It was amazing, but got better!! I was working with PT and they showed me how to get down off the gym mat and onto the floor about 18 inches below without falling. From there I got into a crawling position where the therapists helped me crawl accross the mats on the floor. I would lean my body to one side to unweight the other side while they encouraged my knee to move forward. Eventually I could use the force from my upper body to help move my lower body a little bit! After crawling I could lie down on one side and then get back up into a kneeling position. THEN, yes, there's more! haha...they taught me to rest against the gym mat and prop myself up enough to get my upper body upright to lift and twist my body off the ground into a sitting position on the table/gym mat. I didn't think I would be able to do that until my chest brace came off! Other things in PT/OT included making a dinner, for which 6 of my family and friends ended up showing up for unexpectedly. This exercise was to get me familiar with using the kitchen in a wheelchair. Not the fastest experience of my life, but I think the food turned out ok! Today in PT I was in the standing frame for a while, shooting basket balls (watchout guys!) and then was put into the lite-gait machine. Basically a harness that looks like a parachute attachment on you that supports you upright while your legs are being walked along a treadmill by a couple of therapists. It felt just like I was walking! In my mind, I can move my nerves in my legs to make me feel like I am walking, but to actually have my legs move and see it, it supposed to help with the neural regeneration process. Hopefully. I still have no motor ability below my waist. I have gotten a few abdominal muscles back and a few nights ago I could feel a few patchy spots on my back just a few inches above my tailbone. These are improvements that I love seeing! They are slow to come but I am excited for each and every one of them. No one knows yet how far I'll be able to go. I'm scared for what might happen still, not wanting to get my hopes up but obviously still praying for a full recovery. God doesn't just write out his plan in black and white like we'd like him to some time, huh? *smile* On Saturday, I got the chance to go out and see a tennis game between a couple of paras at Tualatin Hill Rec Center. They played a few games and ran drills with a lady there who volunteered her time to hit balls to them. They got me involved with a few of the drills and my goodness! Try to steer a big chair while running after a tennis ball while thinking of where you want to hit the ball once you get to it! I could play a little tennis before this, but this adds on several new dimensions! It was a lot of fun; my arms got crazy tired after 15 minutes, but the guys were very encouraging with explaining to me the techniques and strategies. So in a few years watch out for me on the courts, I'll be taking names to play! *winks* Sunday, I had a day pass home again. That was a full day. Hard in so many ways. Refreshing to get out of the hospital. And emotional. Just coming home and being in your house where you can't get to most things you normally could. It took 20 seconds to get from the front door to the kitchen, not minus 5 like it used to take me :) When you realize that you can't go upstairs to your room anymore, you can't very easily wash your hands at the bathroom sink. It's hard to open doors. You can't reach a water glass in the cupboard...those things really got me down and I was left just sitting there thinking "now what?" What am I going to do when I come home? I can't clean the kitchen, help with a lot of chores, clear the kitchen table very well. Discouraging. It all swelled up so much in me. I just took a few hours lying down on my sister's bed trying to sort all this stuff through. My family stayed with me and my Dad held my hand the entire time, talking to me, emotional at times but encouraging me. My family is there for me more than 100% of the way and i could tell that! But I couldn't seem to voice or show any appreciation right away with the flood of emotions that wouldn't stop coursing through my mind. I finally fell asleep exhausted for a few hours and woke up with a semi-fresh mind. A couple of my really good friends came over for dinner so the distraction was good for me; especially when they took me out in my car and drove around in the back country roads in my car (which I've missed!) and gave me a pep-talk I needed to hear. God has used to many people in so many ways to encourage me. In my best moments and in my worst. But He somehow all works it out, surprise surprise *smile* I'm still leaning on God for everything. The days are combinations of high ups and low downs. Triumphs, challanges, encouragments, discouragements, sadness, hopefulness, love, prayer, kindness, tears, laughs, smiles, and hope. I don't know what the future is going to hold. Like I mentioned before, I am almost too afraid to hope to walk again if it means dissapointment, but the thought of walking again just gives me so much hope! But I don't know. No one here does, no matter what their level of education. I'm still going on day by day, or more accurately moment by moment. Cards and flowers and notes and e-mails and calls and texts keep me smiling and moving forward every hour each day. In some of my lowest moments, what has sometimes given me hope besides knowing God is in control, is that there are people out there right now who are praying for me. And I have been given the blessing in return of hearing from some of those people that have prayer requests themselves and praying for THEM. I wish I could make this letter longer. I still have so much I want to say, but it will have to wait for a bit longer. I tried to check the spelling for Grant, and I tried to add more paragraphs for Trace. *laugh* I'm a work in progress! But thank you again EVERYONE for everything you've all done. I'm looking forward to coming home next week, even though it'll be quite a switch. God has a few more lessons on this road for me; I'll be sharing them with you I'm sure. You've all been a blessing to me and my family. Thank you doesn't seem enough :) Love to you all, and hopefully another letter soon!! Joanna
Joanna Christiansen wrote17 hours ago: "Here I am, finishing up my last few days at RIO. It’s been 37 days since the accident, but feels longer, obviously because so much has changed and life has been so modified from what I used to know of it. My nurse let me sleep in this morning, which was a blessing, but coupled with an afternoon nap and enough happy memories in the day running through my mind, I remain that insomniac writer. OT has finished up with most of their goals for me here. They’re into experimenting with new equipment with me, like the WiiFit. I had a trial run at playing it to see if it was something RIO should invest in. Haha! I might have been the wrong person to test it out because I HAD to beat my therapists scores at slalom skiing. The fact that I was trying to strengthen my abdominal muscles while balancing on the Wii pad was just secondary. But we got it approved! I’ll just need to come back here to play it.... I’m finishing up with a lot of my goals for PT. I’m finally becoming more consistent on my pop-overs from chair to bed to couch, etc.... so hopefully soon I won’t need someone there everytime I decide to move. I’m fine tuning my wheelies so I can hop up curbs up to 4 inches high and come off sidewalks, wheelie backwards and turn in circles. My nemesis is wheeling down ramps--I’ll try to perfect that tomorrow, haha! I’ve spent the last few days trying to pick out my chair. It’s not something I wanted to do, but facing it, yes, had to be done. There are a bunch of small decisions to make about it like brake type, frame type, compatibility, light weight, tires, padding, etc.--*sigh* at least I have the pom-poms all ready for the handles. And my froggy horn that my cuz sent me from Japan. Those are the more important things after all. I was a little apprehensive last week about coming home, but I’m getting more excited now. One of the biggest downsides is leaving everyone that works here at RIO. They’ve become a support family; I love so many of them here! The nurses and therapists are making me promise to come back and keep them up to date. Good thing I have girlfriends that like to shop on 23rd right here next to the hospital, so I think I’ll be able to pop in frequently. I’ll miss my room, which is pretty much like a college dorm here. My mom is going to have quite the time packing up all my decorations and stuffed animals and cards and pictures. And sparkling cider--I still have a few bottles lying around. Okay, now that I mention it, they’ll be gone soon.... My body is still about the same with patchy sensations below my legs. Nothing fine-tuned. I can feel a cold water bottle on some parts of my legs some days and different parts on other days. I could feel pressure on the bottom of one of my feet one day, but not the next. The biggest encouragement that I had was a few days ago when I was sitting at the edge of the bed, trying to lift my legs in my mind. My mind was doing it just fine, then I noticed just a few muscle twitches in my right leg. Nothing obviously apparent, but I got my ankle to slightly slightly rock and a small muscle twitch in my right quad. Sometimes I can get it to repeat, sometimes I can’t. But I can feel when people tap my knees. And I have some perception of weight shifting in my body. I was in the quadriped position on the gym mat a lot this week along with tall kneeling and sitting. I’ve also been practicing those ground transfers up onto a bench for that day when I fall flat on my face. Which will happen they say--that’s why I’m trying to work so hard to not biff my transfers! I’ve been having a lot of spasms the last few days in my lower body, which is good for muscle tone, but annoying when you’re trying to control where your legs are going. I’ve decided to stay off as much medication as possible, so I’m not taking any meds to decrease the spasms. I see them as mostly beneficial. My legs MOVE because of them! Life is slowly getting back to a normal. I just got back from hanging out with my EMT crowd. We all went out for dinner here on 23rd to celebrate one of my best friends being home on leave from the Navy in the middle East. A couple of my girl friends came to get me all dolled up (literally, they dressed me like a doll, it was hilarious!) so I could look semi-normal again, and not just go in sweats and tees which is what I’ve been living in this last month. We had so much fun, just like old times which reminded me that life keeps going and I’m still a part of it; just as much as I was before. This accident hasn’t taken anything away from me in life; I’m still me. I can’t walk right now. But I’m still me. I still have my same friends who are all now even closer to me, I still joke the same, still eat the same (or more) and still care about people the same. I’ve been blessed in a way to go through this. I’ve lost mobility, but my mind and heart have gained so much. This is still an uphill struggle; not going to lie about that. But I keep going uphill--God’s strength pouring through my friends and family is what keeps me from rolling back. I’m the first person to tell anyone that I couldn’t do this myself. I’m not that strong. Pin the credit on God. I’m just along for the ride of a lifetime--and don’t know where it’s going! I was talking to my friend Emilee this evening, and we were sharing stories of how we’ve seen God work in people’s lives around this situation and in her life down in California. I can’t tell you how much we were both encouraged in our Christian lives just hearing about it. I was shy about my faith before this; not running everywhere in life with a "Christian" sign hung on my forehead because I hate the sterotypes that people put on so-called Christians. But if I knew how many people out there in my/your every day life that are Christians that you don’t know about until you mention God, and how encouraging they are with just one word or prayer to you, I would have been more open years ago! It’s that encouragement and strength that’s getting me through this. I hope you can understand. Okay! I should wind this up--it’s late--and I should sleep sometime. They say sleep is good! I’m still acting like a college student so I’m on a learning curve! I’ll be going home on Tuesday afternoon. I’m sure I’ll spend the day adjusting, then my family and I have a lot of organizing and scheduling to figure out. But once that settles down, and my independence increases life should come to a new medium. I’m looking at selling Subaru Legacy "Duke" which is a manual for the same car just an automatic. I’m looking at driving in 2-3 months, with my doctor’s blessing. It will just require some modifications for gas/brake hand controls. Then hopefully shortly after that I’ll have enough stamina to start going back to my work as a therapy aide. But meantime, I’ll enjoy some time to re-coup and relax. "Relax" isn’t really in my vocabulary yet--but I’m going to try to get a little bit of it in over the next few months! I hope everyone is doing well, I’m thinking of all your support constantly still. I’m still getting cards and e-mails from people that encourage me daily. I want to reply to every single one of them, but that will take just a little time, lol--I’ll send another update after I get home! Love to all, Joanna ************************** Mom's turn I am so thankful for what God is doing in Joanna's life, as well as for all the people He is using to help us here at home. The master bedroom floor and hallway is now pretty much finished thanks to my cousin Jim. The bathroom is serviceable and will be worked on more in the next two days by our friend Mike. The hospital bed and other equipment will arrive on Monday morning. We enjoyed an East Indian meal tonight from our dear friend Priscilla and were able to share it with my brother and sister-in-law who stopped by to help with construction and organization. Every little bit helps immensely towards Tuesday. We are even being forced to inspect and reduce 12+ years of accumulated stuff that is being pulled out of closets and out from under beds (who hides things under beds?). Not a bad activity. Sister Elizabeth finished a big term paper tonight (hear the huge sigh of relief?) and sister Karen is working her way through Nicaragua doing health clinics with Medical Teams International. Joanna's friends continue to either feed her from Red Robin, drive her on outings, schlep her stuff back home (eek! more stuff? bigger Goodwill donation!) or just hang out and visit. Today a harpist made a visit and played for her. Music therapy. The journey to the New Land is getting, in itself, more normal. The currents of His fingers are warm with love and slowly guide us towards His destination in the New Land. The birds which hover near land are being seen more and more frequently - birds of blessing as kindness upon kindness wafts through our lives. We are meeting more and more people who already inhabit the Land of New Normal, people who sail out to meet us and assure us that the Land is wonderful and filled with delights and new challenges. We have only to arrive and take up residence to experience these things. Our journey will not end when we drop anchor. In fact, we probably won't drop anchor but will continue to ride the currents along the shoreline of the New Land, inspecting all the new harbors and coves that contain surprising adventures. There is much to learn of this new place - strange and curious creatures yet to see. We have no map, but the way is marked each day by the light of His wisdom and grace. Storms will still assail us, rocks will thwart our path, but as one friend stated: calm seas do not a sailor make. We sail on for another day and night on the Sea of Trust, mindful of all He has done already to keep us in His purposes. Perhaps the New Normal is already overtaking us................
As we headed for the Port of Home, we were naively certain of our abilities to dock and go ashore. What we had observed in the professionals looked just so easy. Certainly we could do the same once we hit Land. Normal was our goal. But the winds of the unexpected picked up and began to push us closer to the rocky reef that guarded the port's inlet. Wave after wave of frustration and discouragement broke over our little ship until we were scraping the rocks and felt threatened with capsizing and drowning. The Land of Normal looked very far away now, and certainly not within our grasp. We looked to our Captain, pleading for help and endurance to get through the storm. We tied ourselves to the ship and held on for dear life. The next morning dawned bright and clear. A capable and friendly ship sailed alongside and offered to direct us through the reef to the inlet. We gratefully accepted the offer and sailed closely behind until we felt safe enough to navigate on our own towards the dock. Each hour brought us closer to Land. Somehow the air smelled delightfully familiar. The topography began to look at least similar to Normal. But the path from the dock was new and altered from the old one. It lead up a different hill and through new valleys. The climb looked steep, and we could see outcroppings of boulders and tree roots, but it kept feeling more and more normal -- a new kind of normal. We would just have to get out of the boat and begin our land-based journey in this new country. Adventures seemed to materialize with every turn of the path. We helped each other up the path, hand in hand, hearts together in solutions to roadblocks. We can do this, we said! We can find a New Normal. Our Captain merely smiled enigmatically. Our Joanna is living at home once again, albeit in a different room setup with a warehouse of supplies to meet her new needs. But she is happy, and rested, and working to live life as close to her former normal as possible. The first night "Home Alone", with no nursing staff and no call button was scary for all of us, and extremely stressful, but we were able to fumble our way through the "routines" (it all DID look easy at RIO) and get to bed. Joanna's Aunt Becky arrived to save the day, the house and the family on Wednesday and got us organized, fed, cleaned and pointed in the right direction. What a gift to have family and friends who can just step in and take over at times. By Friday we were not dropping Joanna, we had cut our "routine" (lol) times in half and and she was making her own breakfast and doing most of her own transfers between wheel chair and other items of seating or resting. She fired up her social life, fanning the embers of friendships to get out for a "walk", to the mall for shopping and even out to a dinner party. Ah, normal-ish. Seems that way more and more. We still have many issues to address and understand and accept, but doing it from the home front rather than from a hospital setting is much easier and less stressful. Next week is filled to the full with various medical appointments which will put our "routine" to the test. God clearly has us all here for His purposes. Joanna's affirmation of God's control and strength in her life has a number of her friends thinking more about Him. We are constantly being pushed to trust Him more and more, but He has provided answers and resources all along, so we need to keep that in mind as we encounter additional concerns. We continue to urge Joanna to write publicly about her altered life in order to bring the New Normal to others around her. I write to clear my cluttered mind and capture the emotional pictures of my circumstances and to see things in a rational mode. It is stunning to see how far God has brought us from that initial Sunday afternoon event on Mt. Hood just six weeks ago. The journey will continue to be fraught with potholes, hills, dark caves, adventures and new contacts, and stunning panoramas of God's grace. We continue to appreciate the prayers, phone calls, helps of various types, meals, gifts, visits, laughs (yes, even to the point of hysterical gasps with mom on the floor - ask Joanna about that one!). The house phone/intercom system works perfectly Denny. We're looking for you on Wednesday AB. The grab bar works great Mike. The 32" plasma TV? She asked but did not receive. Keep up the great texting Tyler. Thanks for the arm-in-arm encouragement Teri and Pam. Thanks for keeping in touch Anne. Your "project" is doing great thanks in LARGE part to you! We still have your hot water bottle Holly. Your frozen bundles of love still sustain us Seattle ladies. Curry and mango mango anytime Priscilla. Delightful emails Beth and Joyce. No act of love is forgotten before the Father if not mentioned here. Karen returns from Nicaragua on Sunday. There will be tales to tell for sure! Elizabeth is on the countdown to graduation: 4.5 months! It's a sure thing because she got the announcements in the mail last week. Dan is working on finishing the front door ramp so Joanna won't have to bounce off the front porch. There is much finish work inside the house, too, but everything is at least functional. We are learning to dance with a wheelchair and have only been rolled over twice today. Movies are watched from the floor on a pad and creativity soars when it's time to return to the wheelchair. We thank the Lord for His graciousness to us. Resting in His grace, Kathy
The landing party craned their necks to stare up at the snow-mantled shoulders of Mt. Renewal. Somehow it had looked smaller from the Sea of Trust. Now from the sandy beach it loomed much higher and there was no obvious pathway to the top. "No worries", people commented. "We'll figure something out." In the meantime, the solidarity of land felt so stable beneath the feet of the travelers that it persuaded them to linger and play and relax on its dry sandy shore. It provided a much needed respite from the rolling surface of the sea and the sudden storms that overtook the ship. However, Land held some challenges of its own. The days seemed to slip away, sunrise to sunset, again and again, until it became apparent that the landing party wasn't making any progress towards the mountain. It wasn't even looking in that direction anymore. People were gathering comforting supplies around themselves and just attempting to regain some familiar sense of their former lives - the lives before becoming castaways nearly eight weeks ago. Local citizens of this New Land began to visit and engage the travelers and form encouraging relationships. They offered so much information about the New Land that the travelers became weary with an overload and began to feel discouraged again. How could they ever come to feel at home in this place? They were learning the language but the customs were complex, the food odd and the weather a bit too warm at times. In fact, some of the travelers began to say that they didn't really want to even be in this New Land. They felt it was a place to perhaps visit, but taking up residence was just asking too much. "Can't we go back Home?" some would ask. The Captain, catching their eyes and raising an eyebrow, merely shook His head as if to say "not an option now." The travelers knew that they would have to make the best of their new situation and learn to live in the New Land. As days evaporate into weeks, we are seeing a bit of a routine in parts of the day. There's the morning routine and the evening routine. The parts in the middle are filled with medical appointments, hour after hour of driving, waiting, paying, telling The Story, gathering reams of paper, organizing papers, marking calendars so we can do it all over again the next week, eating on the run, finding handicap access bathrooms, finding handicap access parking spots, disassembling and reassembling the wheel chair at every stop and trying not to scratch up the car seats, doors and body, remaining calm during wheel chair spills and near misses, trying to assess how many and which kind of supplies are needed and when to reorder/restock. Did I mention shopping, cleaning, meal prep, visitors, construction yet to finish? And the glue that seems to stick everything together? Humor. Laughter. Sunny dispositions. Cooperation. Caregiver relief. Occasional prepared meals from loving friends and family. Helping hands. Sticky, sweet "glue". Joanna has decided to postpone returning to school until summer or fall term. "I have taken a withdrawal from my class and will pick it up hopefully, Lord willing, in the fall term." Joanna wants to concentrate on strengthening her body. This will happen with the help of physical therapy, home exercise routines, visits to the local gym and eventually the pool, and perhaps other resources such as equipment and a training facility. There is so much to manage and acquire access to and use that it will fill every day to the full. At some point there will be a formal spinal cord injury assessment to more accurately determine the possible outlier of Joanna's recovery, although God Himself holds the key to that one. She wants to stay in excellent condition for whatever her life may hold. While the immediate emergency of our lives has passed, the continuance on this new pathway is still odd and shakey and unfamiliar and fraught with potential dangers. Yet the daphne is blooming by the front door and the golden hops are winding their way up the trellis once again, the birds are gathering nesting materials in the expectation of yet another clutch of birdlets and the sun rises and sets every day just as it has since God set it in the sky. He indeed is faithful and knows the pathway He has placed us on. We try to fight it sometimes and tears are no stranger, but we are committed to making this work for all of us and to looking for how God will use this "tragedy" for His glory and our benefit. The indicators of progress for Joanna will take one to two years to manifest themselves. There is no daily improvement to observe, just daily perseverence. Routine. Perseverence. Meeting new challenges. Perseverence. Setbacks. Perseverence. Embracing the New Normal. Perseverence. Because of the slow pace of our situation now, I will not be writing as often. If you wish to continue receiving my missives, reply with something like "keep me on the list". I will try to let you know about key developments but won't bore you with the daily routines and persevering efforts that consume our lives. I thank you for upholding us through prayer and helps of various kinds and encouraging notes. I know that your lives must move on as well as ours. I hope you stay in touch and let us know what is happening with you too! The Story will continue. The journey up Mt. Renewal will take a lifetime. Hand in hand with The Captain, Kathy (If you would like to write to Joanna and her family, please contact us at BABINC for an email address.)
I continue to try to have an ongoing Bible study with Joanna Christiansen. She continues therapy and rehabilitation while living at home. Progress is very slow with this kind of injury. She has a good attitude and works very hard. While she is unable to walk, she has become pretty functional in her wheel chair. She will be participating in teaching an EMT class at Portland Community College next week. She will shortly be completing the last four weeks of a class she was taking when her snowboard accident happened. Continue to remember her at the Throne. -- DKS